Patient will receive standard of care. Subject will have an actiwatch to compare activity and sleep habits. Nursing staff will be aware of study presence but will not receive any specific instruction for the patient.

Patient will abide by the comprehensive care plan and sign an agreement stating compliance. Subject will have an actiwatch to compare activity and sleep habits. Nursing staff will be notified of study and support patient's compliance with study procedures.

Sickle Cell Disease

Sickle Cell Crisis

Vaso-Occlusive Crises

Care Plan
Patient Controlled Analgesia (PCA). PCA will be initiated and managed at the discretion of the Pain Management team.
Other Medications. All medications will be given during daytime hours, if possible.
Pain Psychology.
Physical Therapy. Patient is expected to spend time out of bed by Day 2 participating in light activity.
Sleep Hygiene. Patient sleeps between the hours of 10 PM and 5 AM daily. Window blinds open by 8 AM. Patient must be awake and ready to participate in therapy by 9 AM.
Extracurricular. TV, phone, computer, and video games only between hours of 4-9 PM (computer okay outside of hours only for school work).
Other. Patient will eat meals during regular daytime hours (e.g. breakfast consumed before 9 am) and shower daily.

Comprehensive Care Plan

Phoenix Children's Hospital

A Comprehensive Care Plan for Pediatric Patients With Vaso-Occlusive Crises

pain scores assessed daily for each patient using the (Visual Analog Scale) VAS scale.

priapism/zmęczenie

A Comprehensive Care Plan for Pediatric Patients With Vaso-Occlusive Crises

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